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April 2024 Newsletter









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TRANSITION TO ADULTHOOD

ANNUAL GENERAL MEETING

The General Assembly (AGM) of Solidarité de parents will be held on Tuesday, June 18, 2024, at 7 PM in virtual mode. This is an unmissable event in an association, and we would like to meet you to talk about the activities carried out, the impact of these activities on families and present some aspects of our action plan for 2024-2025. 

You will receive an invitation to participate in May.

BOARD OF DIRECTORS

At the next Annual General Meeting to be held on Tuesday, June 18, 2024, members will elect the representatives of the next Board of Directors of Solidarité de parents. Two positions will be filled.

Do you want to be part of the decisions made for the organization?
Would you like to work on important issues concerning the future of Solidarité de parents?
Do you want to make a difference for member families?

A virtual information meeting on the roles and functioning of a Board of Directors will be held on Wednesday, May 15, 2024, at 7 p.m. 

To register, please fill out this form.

JASETTE BETWEEN PARENTS

Have you heard of our Jasettes? Have you ever been involved?

“This meeting makes my day! For me, chatting is a priority appointment. I always try to organize my agenda to prioritize it, because I have learned through these meetings that taking time for myself gives me the strength to continue the path we have to accomplish for my child in difficulty. At the same time, I feel that offering a little bit of my experience, it will help, you never know, to help other parents in the same situation. A big thank you to the whole team who know how to listen, comfort, and support us so much! I.C.

“I really enjoyed this little moment at La Jasette. Over a hot coffee and a small gourmet croissant, the atmosphere is warm and friendly. We share experiences, emotions, and above all valuable advice. I highly recommend coming to share this moment with other parents. Personally, it has allowed me to normalize and put into perspective in the face of my challenges and it feels good! Come and share these warm moments with us. Y.S.

WHEN? Thursday, May 23, 2024, between 10 a.m. and 12 p.m. AM. 
WHERE? At La Boîte Gourmande: 445 Laurier Avenue East, H2J 1E5 (across from Laurier metro station, north exit). 

➤ Email registrations at elenaseco@spph.net

You can sign up for our waiting list by email at elenaseco@spph.net  if you would like to participate in the dinner-chat-chat evening on co-parenting hosted by the Regroupement pour la valorisation de la paternité. 

WHEN? Thursday, May 9, 2024, from 6 p.m. to 8 p.m.
Oh?  5600, Rue Hochelaga, H1 3l7 

TESTIMONIAL

” The last meeting of the Solidarity Talks, like the others for that matter, met several essential needs for me and other parents I imagine in similar situations: Need for social connection: By meeting and listening to other parents, I was able to make meaningful social connections with people sharing similar experiences. This helps break the isolation and feel part of a supportive community. Need information: I was able to obtain valuable information on various topics related to your children’s disability. This information is essential to better understand the challenges I face and to explore the different resources available to help me on your journey. Need for moral support: The strength and support of the other parents in attendance were an inspiration and comfort to me. Sharing coping experiences and strategies helps to feel understood and supported in difficult times. In the end, this meeting helped to meet my needs for social connection, information acquisition, and moral support, thus helping to strengthen my emotional well-being and resilience in the face of everyday challenges.”

– Anonymous 

On the occasion of Mother’s Day on May 12th, we are launching the draw for a $25 gift card between participants in a very special testimony.  Please send us a text that describes your life as a mother of a child with a disability or invite a family member to pay tribute to the mother in your household. We also invite you to send us a photo of your child. 

➤ Email testimonials to elenaseco@spph.net

RECOMMENDATIONS OF THE MONTH: READ, WATCH, LISTEN

PODCAST CAPABLE, ENTREPRENDRE SANS LIMITES is a project of the Office for Persons with Disabilities that aims to promote the integration and retention of people with disabilities in the labour market. Recognizing that the traditional route to employment is not always an option for some people with disabilities, the Office hopes to encourage the exploration of other avenues, including entrepreneurship and self-employment, by providing inspiring examples and informing the public about the measures, resources, and supports available to support people with disabilities in their efforts.

The podcast is in French and is hosted by Kim Auclair, a web consultant with a hearing disability. Through discussions with entrepreneurs with disabilities, it aims to share inspiring stories and resources in this area. 

➤ Listen to the first available episodes of the podcast here.  
➤ Watch the podcast on the NEB’s YouTube channel here. 

FREE ONLINE PRESENTATIONS, TO WATCH WHENEVER YOU WANT (IN FRENCH ONLY)…Would you like to get more information, according to your availability, on a free virtual platform?

L’accompagnateur regularly presents conferences that we advertise in our Newsletter every month, but did you know that some presentations are recorded on their Youtube channel? Here is the selection of workshops available related to wills and the transition to adulthood that were presented by two notaries, Me Mélanie Bellemare and Me Joanie Lalonde-Piecharski, between 2020 and 2023.

➤ The new assistance measure Watch the replay here!
➤ Guardianship at the age of 18: changes since the law to better protect people in vulnerable situations came into force in November 2022. Watch the replay here!
➤ The importance of a well-adapted to the reality of an heir with special needs Watch the replay here!
➤ The Transition to 18 and Wills for Parents of Children with ASD. Watch the replay here!
➤ Guardianship at the age of 18. Watch the replay here!

BEFORE OR AFTER YOUR CHILDREN TURN 18, GET INFORMED ABOUT THE TRANSITION TO ADULTHOOD

LET’S SORT OUT THE ROLES

Is a caregiver a legal representative?
Although a caregiver can support a child with a disability in many areas of his or her life, he or she is not necessarily a legal representative.

A court decision, based on medical and psychosocial assessments and establishing the incapacity of the person in a vulnerable situation and his or her need for representation, is required for the caregiver to be recognized as a tutor to the adult, a temporary representative, or a mandatary. These are the three types of legal representation.

The assistance measure, although it is not part of legal representation (no legal proceedings are required), can make life easier for people in vulnerable situations

Role of the caregiver
• They take care of a vulnerable person in their environment, with whom they generally have an emotional bond, who has a physical, psychological, psychosocial, or other disability, to promote their recovery or to maintain or improve their quality of life.
• The caregiver’s assistance can take different forms. For example, they can offer emotional support to the person they are caring for, make appointments, accompany them on their travels, do their shopping, prepare their meals, and provide certain hygiene or health care.

Role of the Assistant
• Helps a person experiencing any difficulty to make decisions and manage their property.
• Recognized by the Curateur public, it can communicate with third parties (businesses, ministries, agencies, professionals) on behalf of the person to obtain or transmit information.

Role of the legal representative or agent
• They are legally representing a vulnerable person who is incompetent by a court because they are unable to take care of themselves or manage their property.
• He consents to care for the incapacitated person if he or she is unable to do so himself.
• He ensures the well-being and administration of the principal’s property and makes important decisions for the person he represents, signs on his behalf, and manages his property, always ensuring that his actions are in the interest of the person represented and in respect of his wishes and preferences.

It is possible to assign all responsibilities to a single agent or several agents. Thus, the principal could appoint a person to assume the role of agent for the person and appoint one or more persons as agent for the property.

  1. The agent( s) to the person. Responsible for ensuring the moral and material well-being of the principal (decisions relating to accommodation, hygiene or medical care, purchase of personal belongings, etc.)
     
  2. The agent( s) for the property. Have the task of looking after the principal’s property. A corporation, such as a trust company, can act as an agent for the property.

➤ For more information on the protection mandate, Click here.
Watch here a presentation by notary Mélanie Bellemare on the Power of Attorney and the Protection Mandate (registered in 2022).

THE PROTECTION MANDATE

A protection mandate is an official document by which an adult and competent person appoints one or more trusted persons to make decisions about their property (e.g., finances), but also to take care of them in the event of incapacity (e.g., to decide what care their condition requires if they are unable to do so,  etc.).

Two types of protection mandates are provided for by law:
➤ Notarial mandate (made by a notary)
➤ A power of attorney in the presence of witnesses (drawn up by a lawyer or by the person himself/herself).

WHAT ABOUT CONSENT TO CARE?

According to the Civil Code of Québec, every person is presumed to be capable of consenting to the care offered to him/her, whether he/she is under guardianship or not, or whether or not his/her protection mandate has been homologated.

Capacity to consent must be verified by the provider of care each time treatment is offered. A person is considered capable of consenting if he or she understands:

  • the nature of the illness;
  • the nature and purpose of the care provided;
  • the benefits and risks associated with such care; 
  • the risks involved if such care is not provided;
  • that their state of health could influence their capacity to consent

When the person is deemed capable of consenting, the person’s wishes must be respected and the person can decide whether or not to receive the proposed care.

If the person is found to be incapable of consenting, others will have to decide on behalf of the person by substituted consent. Here are the different possible situations.
 

The person is:The one who consents is the:
No protective measures and no loved one’s presentPublic Curator
Under an approved protection mandateAgent for the person
Under private guardianshipGuardian, Tutor
Under public supervisionCustodian, first and foremost Public Trustee, as a last resort

The Curateur public has a childcare service available at all times for requests requiring urgent intervention on its part. 514 873-4074

Exceptions to the rule: If the person’s life is in danger and consent cannot be obtained in time, emergency care can be provided without consent. If she categorically refuses the treatment offered to her, a court authorization will be required to treat her against her will and protect her health.

➤ For more information, click here

NEW CAP18 PARENT CAREGIVER PLATFORM

Many parents are concerned by the various issues related to the transition to adulthood of their children: these children are considered adults from the age of 18 but they do not become autonomous. Boris Mayer St-Onge, parent of a daughter with autism spectrum disorder, decided to take matters into his own hands by creating a brand-new website, BY and FOR parents of children with special needs: Parent Caregiver | Cap 18 years old. The help platform will be launched in 2024. The platform aims to support and inform caregivers facing complex administrative responsibilities when their children with special needs reach the age of majority, as they are considered adults and autonomous in the eyes of institutions. The website will explain the issues at stake and provide a timeline with the different steps to be taken to reach the age of majority. 

Moving from a pediatrician to a family doctor and from the children’s hospital to the adult hospital, finding new specialists, filling out forms SR-0014 and SR-2100, applying for proof of school attendance, going back to the doctor to ask him to fill out another form because the previous one was for another department, opening a bank account for a person who is unable to take care of him,  learning that we had to file a tax return at age 17 (even without income) to maximize contributions to the RDSP, reviewing our wills, considering testamentary trusts, protective supervision (tutorship), increasing calls and pressures to have a social worker on file, filling out form 3003-01, form 3003-02, form 4086…

We love this initiative! Solidarité de parents de personnes handicapées is proud to join forces with L’Appui pour les proches aidants, Finautonome, and L’accompagnateur to help propel it forward!

➤ Sign up to receive an alert when the platform goes live. https://parentcap18.ca/
➤ Read the article here Bienvenu dans la jungle des 18 ans published in the newspaper Le Soleil on April 9, 2024.
➤ In addition, The Guide to Turning 18 brings together all the information you need to consider and is intended to guide you through this process. You can download it for free as a PDF right here.

ADAPTED VEHICLE SHOW

Spinal cord and motricité Québec (MÉMO-Qc), in collaboration with the Centre intégré universitaire de santé et services sociaux de la Mauricie-et-du-Centre-du-Québec (CIUSSS MCQ), announces the return of the Adapted Vehicle Show in its 14th edition. The event is free and open to all.

Numerous vehicle adaptations will be presented. From the Tesla to the Ford F-150, or the SoloRider golf cart, the Toyota Carnival and the classic Grand Caravan, and several suppliers and collaborators will be present such as TVR Technologies, Eureka, Savaria, Adaptation04 and Adapt Solutions. 

Discover, get inspired and talk to the owners of the various vehicles and also benefit from the expert advice of an occupational therapist specializing in driving rehabilitation from the CIUSSS MCQ, who will be on hand to answer visitors’ questions. 

WHEN: Sunday, May 26, 2024, from 1 p.m. to 4 p.m. (rain or shine)
WHERE: In the parking lot of the Nicolas-Perrot Administrative Centre, 1775 Nicolas-Perrot Street, Trois-Rivières, Quebec G9A 1C5 

➤ For more information, please contact Édouard Boucher, community organizer, at the following email address: eboucher@moelleepiniere.com

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