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March 2024 Newsletter









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AUTISM MONTH

WHAT IS AN ANNUAL GENERAL MEETING?

The Annual General Meeting (AGM) is a pivotal moment in the life of our organization! The AGM is a yearly gathering of all members of any community organization. It’s an opportunity for each member to contribute to the governance of the organization and participate in decision-making. It’s the time when members review and discuss the activities, finances, and future projects of the organization.

Dear SPPH members, Why is your Presence Important?

1. Transparency and Accountability: The AGM is an opportunity to be transparent about the actions and results of the past year. It’s the moment for presenting the activity report, financial statements, and organizational directions. You’ll get an overview of SPPH.

2. Engagement and Democracy: Your presence and contributions strengthen internal democracy. By participating in discussions and voting on important matters, you have a voice in SPPH’s direction.

3. Exchange of Ideas and Perspectives: The AGM is a chance to exchange ideas, suggestions, and thoughts about SPPH’s future. Your perspective is valuable and can help shape future decisions.

4. Community Building: By bringing members together, the AGM enhances the sense of belonging to the community. It’s an opportunity to meet other members, share experiences, and build connections.

Your participation in the Annual General Meeting is valuable and contributes to strengthening SPPH, and it will be a rewarding experience for you. We hope to see many of you there to share successes, challenges, and aspirations for SPPH’s future. Details for registration will follow in the next Newsletter.

WHAT IS A BOARD OF DIRECTORS (BOD)?

Members of the Board of Directors are volunteers elected during the Annual General Meeting (AGM), with the mandate to administer the community organization and ensure the implementation of its mission. The Board plays a crucial role in defining the vision, strategic objectives, and governance of the organization. The Board’s role is to make informed decisions in the best interest of the organization during monthly meetings. SPPH’s Board consists of 9 members, with 2/3 being parent members of SPPH.

Why Join the Board?

  • Positive Impact: As a Board member, you’ll have the opportunity to directly contribute to shaping the future of SPPH and making a significant impact on the mission, initiatives, and lives of member families.
     
  • Professional Development: Serving on the Board provides a unique opportunity to develop your leadership, strategic management, and decision-making skills.
     
  • Community Engagement: By getting involved on the Board, you become an integral part of the community, working alongside like-minded individuals with common goals for the well-being of families with disabilities.
     

During this year’s AGM, 2 positions will be available to complete the Board composition. SPPH is looking for passionate, committed individuals with diverse skills and experiences to join the Board. Whether you’re a long-standing member or a young parent, whether you’re actively involved in the community or new to the field, your candidacy and contribution will be appreciated. Thank you for your interest and continued support.

 If you have any questions or if you’re interested in joining the Board of Directors and playing a key role at SPPH, please contact direction@spph.net to receive the application form.

Furthermore, Volunteer Action Week (VAW) from April 14th to 20th is the perfect time to pay tribute to SPPH volunteers. A special thank you to our Board members!

Sara Tremblay, Elisabeth Basemeg, Mohamed Reda Khomsi, Annie Hulmann, Mélie-Jade Dagenais, Julie Morin, Sylvie Alarie and Hatim Abid. Your contribution is invaluable!

As a Board member, you dedicate your time, energy, and skills to support the mission and serve SPPH. Your commitment and generosity make a difference!

MEETING BETWEEN PARENTS

Would you like to get out and about and meet new people? 
Come and have a comforting coffee with Solidarité parents!

When will it take place? Thursday, April 18, 2024, between 10 a.m. and 12 p.m. 
Where: La Boîte Gourmande: 445 Laurier Avenue East, H2J 1E5 (across from Laurier metro station, north exit).

Register by email to elenaseco@spph.net  

Furthermore, our upcoming chit-chat night will focus on co-parenting. A presentation on its various aspects and what parental commitment entails will be hosted by Mathilde Pointud and Mario Bonin from Regroupement pour la valorisation de la paternité. 

Teaming up and working together to ensure the well-being of your child, whether they’re young or grown, always easy? Of course not! Being a mother or father of a person with disabilities presents additional challenges for the co-parenting team. We invite you to come discuss this with us with your partner, but whether you’re in a relationship or not, you are welcome! Dinner will be provided.

When? Thursday, May 9, 2024, from 6 p.m. to 8 p.m.
Where? 5600, rue Hochelaga, room 30, H1N 3T1

Please register before April 15th by e-mail to elenaseco@spph.net  

TESTIMONIAL

« Testimony of support and gratitude towards SPPH chats: I am profoundly thankful for the solidarity chats for the precious space they provide for parents like me, navigating alongside a disabled child. These gatherings are much more than mere information-sharing opportunities; they are sources of comfort and mutual understanding. Through encounters with other parents in similar situations, I discover new perspectives and valuable resources to better support my child. But beyond the exchanged information, it’s the moral support and empathy that make these moments so precious. By meeting other parents facing the same challenges, I feel less alone in my journey. The caring and inclusive atmosphere of Solidarity chats allows me to express myself freely, without fearing judgment. It’s an immense relief to be able to share my concerns, hopes, and fears with others who truly understand what I experience daily. I want to express all my gratitude to Solidarity for their commitment and initiatives aimed at bringing together parents of disabled individuals. Their work is truly invaluable for parents like me, facing often unknown and complex realities. Thank you for all you do to support us on our journey.. »

– Anonymous

According to the World Health Organisation, one child in 100 is currently diagnosed with an autism spectrum disorder (ASD).

This condition brings about varying degrees of difficulty in communicating and interacting with others. These children struggle to recognize others’ emotions, understand how they feel, and initiate and maintain interaction, conversation, etc.

They also exhibit behaviors and interests described as “repetitive and/or restricted”: they can become highly proficient in a particular area they enjoy, prefer their environment to remain unchanged, and engage in repetitive gestures like rocking back and forth, clapping hands, hopping, etc.

Children with ASD are also often affected by sensory hyper- or hyposensitivity: they may be extremely sensitive and bothered by stimuli in their environment, or conversely, not react to them at all.

All of these challenges present them with ongoing difficulties, not only in their ability to function and navigate daily life but also in their ability to form relationships with others.

Are you seeking information about autism?

Click here to view the toolbox on the webpage of the Quebec Federation of Autism FQA.
Click here to view the parent support on the Autism Montreal webpage.
Click here to view useful links on the Autism Montérégie webpage and click here to view their Guide for autistic and non-autistic individuals, Understanding Each Other Better.
Click here to view useful links on the Autism Quebec webpage.
Click here to view useful links on the Autism Estrie webpage.
Click here to visit the website of the National Network of Expertise in Autism Spectrum Disorder.

RECOMMENDATIONS OF THE MONTH: READ, WATCH, LISTEN

ON THE SPECTRE

Are you familiar with the Montreal Autism Cognitive Neuroscience Research Group’s magazine On the Spectrum? You can check out the notebooks and scientific articles prepared by the Group, which focuses its research on brain functions in autism, visual and auditory perception, autistic individuals’ special abilities, and interventions in autism. This project is also supported by the CIUSSS-NIM research center.

➤ Click here to view Magazines On the Spectrum

You can also watch on the YouTube channel “On the Spectrum” videos covering topics such as sleep, myths and realities, and preferred interests in autism.

Watch the YouTube channel “Sur le spectre” here.

Listen up and check out the podcast “On the Spectrum” available on various platforms.
 Youtube, Spotify, Amazon Music, Deezer

L’EXPRESS

L’EXPRESS is a scientific popularization magazine on autism. It comes out once a year and is published every April. The issues are available for free download on the Quebec Autism Federation’s website and can also be purchased in print for $15.

 Check out the April 2024 issue of L’express magazine here.
 Check out the reviews of L’express here.

CANADIAN CAREGIVER TAX CREDIT

You asked us if you’re eligible for the Caregiver Tax Credit. Here’s what we can tell you about that. The Canadian Caregiver Tax Credit is a non-refundable tax credit (reduces the amount of tax owed, but doesn’t result in a refund). It can be claimed for one or more individuals who are under your care due to a physical or mental disability.

Eligibility criteria :
To be eligible, the taxpayer must have dependents.

The dependent does not need to live with the taxpayer, but it must be demonstrated that at least one of the basic needs of the person is being provided for (housing, clothing, food). There are no fixed criteria for establishing this connection, it just needs to be demonstrated within reason.

Specifics of the caregiver tax credit
The tax credit for caregivers (which entitles you to a refund) has two components:

  1. The first part concerns anyone helping an individual aged 18 or older who has a severe and prolonged mental or physical impairment and requires assistance with carrying out a common daily life activity.
     
  2. The second part pertains to anyone assisting a loved one who is 70 years old or older and living with them.

 Attention: You’re not eligible if your child or relative lives in a private seniors’ residence or in housing located within a public network facility (which includes RI, RTF, and RACS).

 Remember that the deadline to file your income tax return and send it to the Canada Revenue Agency (CRA) is April 30th.

 All the information is in this link from Revenu Québec.

CONFERENCES

Join the February video conferences organized by L’accompagnateur :

April 11, 2024, | 6 PM – 8 PM
Québec Revenue: People with disabilities and taxation

April 23, 2024 | 12 PM
Launch of the From-Our-Home-to-Your-Home Support Program

April 23, 2024 | 7 PM
Discover the Aim High Program!

April 30, 2024 | 12 PM
Housing and Living Environments – Association for Social Integration of the Québec Region

 

To Register

PLANNING WORKSHOP (POWER OF ATTORNEY, MANDATE FOR PROTECTION, ADVANCE MEDICAL DIRECTIVES AND WILLS)

A legal information session on “Better planning for greater serenity” will be given by Éducaloi thanks to CRADI. The workshop will cover a number of topics, including powers of attorney, protective mandates, advance medical directives, and wills.
 
The session is free and will take place on Monday, May 13, 2024, from 7 to 8:30 p.m. and will be in hybrid mode. (For those wishing to attend in person, the location will be announced in the coming weeks. For those wishing to attend online, the connection link will be sent to you a few days before the meeting).
 
 Registration is compulsory before April 16 at noon and can be done here.  
If you have any questions, please write to agentdd@cradi.com

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