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February 2024 Newsletter









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LET’S TALK FINANCES

PROGRAMS SOLIDARITÉ

The month of March begins with spring break and thanks to our respite programs La tête en congé (TEC) and 60+, 54 Families who are members of Solidarité de parents will be able to hire one person to accompany their child during March Break 2024, for 32 hours of support per family. 

March is also full of special events and days that support people with disabilities.  Our current newsletter is filled with information about taxes and special content about the Service Employment Paycheque, among other things. Happy reading!

IN-PERSON MEETINGS WITH PARENTS

Would you like to take some time for yourself in 2024? 
Would you like to go out and find the opportunity to meet new people? 
Have you heard of or participated in one of our Chats and know the benefits of socializing and sharing with peer supporters? 
Having a child with special needs is not easy and that often, the gaze of others, their questions, and your comparisons cause significant stress and a feeling of emptiness and sadness. Parents often feel guilty and helpless, and you are no exception. Are you worried about your child’s development? Do you think you’re unlucky and think you’re the only one in the world? Don’t have a network? Is it unthinkable for you to ask friends, neighbors, or family to help you out when you have an emergency? Do you have any questions that haven’t been answered yet?
Come and meet other Solidarité de parents! 

When? Thursday, March 21, 2024, between 10 a.m. and 12 p.m. AM. 
Where? At La Boîte Gourmande: 445 Laurier Avenue East, H2J 1E5 (across from Laurier metro station, north exit). 

Registrations with Elena Seco by email at elenaseco@spph.net

FAMILY MATCHING

Would you like to be able to talk to another parent of a child with special needs in a similar context as you? Would you like to meet another family to talk to or connect with in particular? Maybe you’re looking for a friend for your child?  Beautiful encounters and connections can be born between people who want to create a network. 

We need more families who want to be matched with another family living with a child with special challenges to have a family bank to compose and give a little impetus to our Family Match Program. That said, there is no commitment between our members.

You choose your criteria: 

  • Is it your cultural background, the one that would help you connect with someone and feel understood?
  • Is the diagnosis what is important to you to discuss issues common to yours?
  • Is your child’s age prioritized to be able to share? Or are you looking for a family with experience with a child older than yours?
  • Is your address (place of residence) the criterion that would allow you to feel closer to another person? 

CriteriaYour SituationVery important criterionMedium CriterionNot at all important
Cultural BackgroundEx. Algeria   
DiagnosticEx:ASD Level 2   
Child ageEx: 9 years   
AddressEx: Rosemont   

If you are interested, you can send your answers to elenaseco@spph.net 

EVENTS FOR THE MONTH OF MARCH

QUEBEC INTELLECTUAL DISABILITY WEEK

Quebec Intellectual Disability Week is celebrating its 36th anniversary from March 17 to 23, 2024 under the inspiring theme “I have my place!”  This week is an opportunity to raise awareness of the realities faced by people with intellectual disabilities and their loved ones through inclusive awareness activities offered across the province. 
This slogan calls for the affirmation of people with intellectual disabilities and their loved ones. At the heart of this theme is the desire to express one’s reality and make Quebec an inclusive society. At the same time, the theme “I have my place!” invites us to reflect on the place that is given to people with intellectual disabilities in their daily lives. In the workplace, in education, among young and old, it is important to recognize the needs and full contribution of people with developmental disabilities.

WORLD DOWN SYNDROME DAY

On March 21st, remember to put on your mismatched stockings to support the cause and raise awareness about trisomy 21.
 

PURPLE DAY FOR EPILEPSY AWARENESS IN CANADA

On March 26, you’re encouraged to participate in epilepsy awareness efforts by wearing purple to show your support for those suffering from this neurological condition that affects one in 100 Canadians, nearly one-third of whom are children.

MARCH – JUSTICE MONTH

Since 2015, the month of March has been dedicated to access to justice. Once again this year, you can enjoy a free 15-minute consultation with a professional (notaries and lawyers).

  • Where? In the Place-des-Arts Metro 
  • When? Thursdays, March 7, 14, 21 and 28, 2024
  • At what time? From 12:00 p.m. to 6:00 p.m.
  • No reservation is required. 
  • It is important to present yourself with all the documents relevant to your legal questioning: lease renewal notice, court notice, contract, will, judgment, demand letter, etc.
  • Consultations last 15 minutes.
In addition, it is usually no later than March, the time of year when rent increase notices are received and lease renewals are prepared.  In 2024, the Administrative Housing Tribunal is proposing a 4% increase for unheated or electrically heated dwellings and a little less for gas or oil-heated dwellings. At Solidarité de parents, we have noticed that it is common for our members to have housing problems.   Did you know that there is a service available to tenants from all over Quebec who have an active file with the Administrative Housing Tribunal (TAL)?
  • The mission of the TAL’aide project of the organization Juripop is to offer free legal assistance to allow people to navigate through the procedures of the Administrative Housing Tribunal (TAL).  This is a fully personalized service where the lawyer who will be assigned to your case will be able to take the time to analyze your proceedings filed with the TAL, advise you on the evidence that must be presented to the court, and discuss with you to identify the arguments to be made for your case. The lawyer will meet with you once or twice, depending on the nature of your case, to give legal advice.
     
  • To receive TAL’aide support, complete the service request form here.
  • A phone line (1-833-587-4767) is also available from 9 a.m. to 12 p.m. and from 1 p.m. to 4 p.m. Monday to Friday to answer any questions about the project. 

RECOMMENDATIONS OF THE MONTH

TO VISIT

The exhibition D’un œil différent continues for its 19th edition at the Écomusée du fier monde, from March 13 to 24, 2024. This multidisciplinary cultural event, held annually as part of Quebec Intellectual Disability Week, is organized by several partners, including the non-profit organization of the same name. D’un œil différent promotes the visibility and promotion of the artistic talent of people living with ASD-ID by bringing together approximately 200 artists and performers with or without an intellectual disability or autism spectrum disorder, around a visual arts exhibition and a variety of programming.

  • Wednesday, March 13, starting at 4 p.m., the opening of this exhibition (sculptures, paintings, photographs, and interactive installations) will take place at the Écomusée du fier monde. The exhibition will run until March 24.
  • Thursday, March 16 (schedule to be announced) Documentary Laissez parler votre cœur 
  • Sunday, March 17 at 1 p.m. – Couleurs et brioche 
  • Wednesday, March 20 at 5:30 p.m. – Presentation of the film Dans mes yeux
  • Saturday, March 23 at 1:30 p.m. – Presentation of Lou, une expérience de l’autisme en réalité virtuelle

LISTEN NOW

With its new podcast Tout inclus, the Commission des droits de la personne et des droits de la jeunesse invites you on a journey into the lives of inspiring individuals who have to overcome barriers to study, work or even play because of a physical or mental disability.
A window on the challenges of inclusion, but also on solutions and successes.
In the first episode, Valérie meets Mathieu Caron, a neuroatypical employee, and Samuel Lessard-Beaupré, one of her bosses at Géogène Café, a micro-roaster in the Eastern Townships.

 
READ MORE
In this TVA Nouvelles article, Carolyne Lavoie, Assistant Director of Solidarité and head of Répit Québec, talks about the situation regarding respite for families with disabilities. Respite is becoming “a luxury” for the few families who have access to it or can afford it, Lavoie said.
 
TO PARTICIPATE
RNETSA ANNUAL DAY
On March 13, 2024, for its annual conference day, the Réseau national d’expertise en trouble du spectre de l’autisme (RNETSA) has decided to build on the strengths of autistic people and the various conferences presented will allow participants to gain new knowledge about the strengths, interests, and passions of autistic people. The 2024 Annual Day will be held in person at the Centre Saint-Pierre, but will also be recorded and available for 30 days to participants in the activity (tickets are also required).
Various themes will be addressed: reading before starting school, education, integration, and job retention, as well as collaboration. 
The following lectures will be presented by researchers, clinicians, and autistic people:
  • And you, what are you good at?
  • Using the Reading Strength of Young Children with Autism with Hyperlexia to Support Their Language
  • Strengths and Interests in Autism: A Lever for Well-Being and Social Participation
  • 100% co-design projects: more than inclusive and participatory projects!
  • Building on Strengths with VIVIS: Aiming for Inclusion for Employment Success
  • To consult the program, click here
  • To get tickets, click here

SPRING BREAK ACTIVITIES

Montreal for Kids magazine is full of information and activities for families, and for spring break, their special issue on activities to do and the benefits of attending a camp will delight you.

Read Here

$$$

GETTING READY TO DO YOUR TAXES

The tax filing period is underway. Completing your tax return can be a complex exercise, but it is important not to neglect it to benefit from all the available credits and deductions. 

Did you know that there are specific tax measures for people with disabilities, their families, and loved ones? 

  • The Persons with Disabilities profile makes it possible to quickly find up-to-date information on programs and measures that affect them and to avoid the multiplication of sources of information. More specifically, information on tax measures can be found in the Tax Measures and Annuities section. It’s simple and centralized.
There’s something new for the 2023 tax year! 
  • Notably, at the federal level, the definition of “eligible family member” has been extended and expanded for the opening of a Registered Disability Savings Plan (RDSP). 
     
  • A new tax credit has also been created: the Multigenerational Home Renovation Tax Credit (MHREB). In fact, it is now possible to claim a rebate for the construction of a secondary dwelling dedicated to a senior or an adult eligible for the disability tax credit.
     
  • Finally, a new online service will be offered to some people to do their taxes: the simplified tax return. This service will be available as of March 4, 2024. As this is a pilot project, only those who have received an invitation letter will be able to use it. For more information, see the Simplified tax return page.
     
Did you know that tax clinics provide low-income people with free or low-cost services to help them file their taxes? 
  • There are several types of tax clinics depending on the clientele prioritized (clinics for seniors, clinics for newcomers, clinics for anyone with a low income) and the period during which they file their tax returns. 
  • Are you familiar with the Income Tax Assistance – Volunteer Program?  If you have a modest income and a simple tax situation, a volunteer who participates in this service may be able to help you complete your tax returns and get the benefits and tax credits to which you are entitled. This program is jointly administered by the Canada Revenue Agency and Revenu Québec.
    • For more information and eligibility criteria, click here 
       
  • To access the list of tax clinics, also known as preparation sessions, consult the Revenu Québec page List of tax preparation sessions.
Extension of the eligibility period for the refundable tax credit conferring a one-time cost of living
  • To support individual Quebecers who are facing a persistent increase in the cost of vie, On November 9, 2022, the Ministère des Finances du Québec announced the introduction of the refundable tax credit conferring a one-time amount for the cost of living. In January 2024, it was announced that the deadline for receiving this tax credit would be extended in order to allow more individuals to benefit from it.  This refundable tax credit is available to all eligible individuals who file their income tax return for the 2021 taxation year on or before June 30, 2024, and whose net income for 2021 was less than $104,000. If you and your spouse (if applicable) are eligible individuals, you will each receive the tax credit based on your respective net income, up to $600 or $400 if you are eligible. The amount will be paid in September 2024.
     
  • Note: If you were a recipient of last-resort financial assistance on December 31, 2021, and you received an automatic payment of the basic amount of the QST component of the solidarity tax credit for the payment period from July 1, 2022, to June 30, 2023, the amount of the tax credit was paid to you. You did not have to file a tax return to receive the tax credit.
     
  • For more information, see the page Refundable tax credit conferring a one-time amount for the cost of living and Information Bulletin 2024-2 (PDF – 170 KB) This link will open a new tab on the Ministère des Finances website.
FINAUTONOME,
Finautonome is a community-based organization dedicated to the financial well-being of people with disabilities that offers support and educational tools to help them more easily access existing financial assistance, through government programs and tax measures. Their website is now more accessible with a conversational agent (a chatbot) named Charlie that facilitates navigation, ten information capsules translated into LSQ and with an accessible transcript as well as two 30-minute webinars, one of which is intended for families with a member with a disability and the other for Quebec notaries so that they are better equipped to respond to families. 

Finautonome offers free conferences and one-on-one services to its members. Membership to the organization is $20. 

CHRISTMAS IN SPRING FOUNDATION
Did you know that the Noel au Printemps Foundation (FNAP) can financially support certain expenses to improve the well-being of your child and your family?  Does he need physiotherapy, occupational therapy, kinesiologist, purchase of specialized equipment, camp, respite, etc. and you don’t have the financial means?  The FNAP may partially fund certain treatments that are recognized as effective and not covered by an insurance plan.
Applications are reviewed three times a year by a selection committee that meets in September, December, March, and June.

Eligibility Criteria:

  • Be a Canadian citizen and reside in Quebec.
  • Take advantage of the Canada Child Tax Benefit.
  • Receiving (or in the process of receiving) benefits for children with disabilities.
  • Have a maximum family income of $60,000 gross (before deductions).
  • If you meet all the criteria, please complete the eligibility form.

SERVICE EMPLOYEMENT PAYCHEQUE

PÉTITION SEP/CES

In November, Parents pour toujours launched a petition calling for a review of the Service Employment Paycheque (SEP/CES) and Ex aequo joined them in leading the Service Employment Paycheque on the Edge of the Precipice campaign. This petition was closed on February 23rd and has reached more than 3500 signatures. 

In tandem with this petition, Ex aequo launched a blitz of letters to the deputies of the National Assembly to make more specific demands concerning the SEP/CES, which several groups have officially endorsed since April 2022.

Many people who use home support use the Service Employment Paycheque (CES) program to hire their attendants. The CES allows people to choose their own attendant, to determine their schedule according to their pace of life, and to have consistency in the person who supports them. But the conditions of the people who work there – the vast majority of whom are women – are precarious. It is the government that imposes these poor working conditions. Because of this, people who need the CES are no longer able to hire and keep their attendants. While CLSCs are pushing more people than ever to CES, the program is in distress.  Write to your MP to tell them why the ESC needs to change. The form below allows you to automatically send a letter to your Member of Parliament based on your residential address.
 
You can still participate! Simply and quickly, you can send a letter to your MP through an online platform.

Founded in 1980, Ex aequo is a Montreal-based organization dedicated to promoting and defending the rights of people with motor disabilities. It promotes universal accessibility as a means of making social inclusion possible. The different facets of inclusion defended by Ex aequo are transportation, municipal life, health and social services, housing, parenting, food security, and citizen action.

Parents pour toujours is a group of parents caring for their disabled child of legal age. 
 

WHAT IS THE SERVICE EMPLOYMENT PAYCHEQUE (CHÈQUE EMPLOI-SERVICE)?

Service Employment Paycheque (SEP) (In French is called allocation directe/chèque emploi-service (CES) is a home support service delivery modality that allows families to select and employ a worker who will provide some care for their child with very high needs. The CLSC therefore allocates hours of services based on the identification of needs and service planning and allocates the necessary amounts to pay for the services required through the Centre de traitement du chèque emploi-service (CTCES). In short, no money passes through the user.

Support services include personal assistance, such as assistance with bathing, feeding assistance, dressing, and some transfers (from chair to bed, chair to toilet, etc.) as well as domestic help, such as household chores, meal preparation, laundry, ironing, and shopping.

The booklet You Receive Help outlines the terms and conditions of the Direct Allowance Program – Service Employment Paycheque and your obligations and responsibilities as an employer.

If you want to know the obligations and responsibilities of the person who provides home help services, you can consult the website of l’Appui or the brochure in French Vous fournissez un service d’aide à domicile à une personne handicapée ou en perte d’autonomie. 
 

EMPLOYEES OF SEP

It’s awkward to talk to an employee (home attendant/helper) that we welcome into our home to provide care to our darling child. When you notice a drop in your performance or you don’t do what you ask, it brings stress. On the other hand, put yourself in an employee’s shoes, it is also difficult to talk to your employer (the parent) when your demands change, or the working conditions are not as promised, or you do not feel appreciated or respected.

One way to make it easier for your child to have discussions with your caregiver is to plan and make them official. For example, every 3 months, we encourage you to sit down together and talk to each other “How is it going?”  According to the Standards, you must pay for the employee’s time during this meeting.

It’s time to say:

  • Thanks for… I appreciate that…
  • I’ve noticed that… (the cause is not your focus here, but the task itself)… And that’s causing me this problem…
  • I’d like to…
  • I’m not comfortable when…
  • I’d rather that…
  • Do you have any requests for me?
  • Do you lack the tools to do your job?
  • Etc.
  • Thank you.
  • Specify the date of your next cordial exchange.

We recommend that you have a clear to-do list to refer to in case of any mistakes or oversights.



Register now | Free event

My leg is different, let’s talk about it!

A day on congenital malformations
of the lower limbs in pediatrics

The annual MUSCO event is back for a fifth edition

Saturday, March 23th, 2024
9:00am – 4:45pm

This event is primarily aimed at parents, families, and caregivers of children with a congenital malformation of the lower limb and who wish to learn more about the subject. Professionals are also welcome to attend if they wish to learn more about the resources available to and issues faced by the families they work with.

Thanks to the collaboration of the teams of four Montreal pediatric centers, namely, the CHU Sainte-Justine, the Marie Enfant Rehabilitation Centre, the Montreal Children’s Hospital and the Shriners Hospitals for Children – Canada, this event will once again bring together families, professionals, organizations and partners to discuss a unifying theme.

On the program:

A mix of lectures, panels, and testimonials related to pediatric congenital lower limb malformations, such as angular and rotational deformities of the lower limbs, clubfoot and other congenital foot deformities, spina bifida, arthrogryposis, congenital leg length discrepancies (LLD) and developmental dysplasia of the hip (DDH).
Topics to be covered include potential causes of certain malformations, preventive and curative treatment options, prognoses, outpatient aids, different ways of having a discussion with your child about a diagnosis, and fostering partnerships between families and professionals.

The event will take place in 2 blocks:
➤ Medical section
➤ Social and rehabilitation section

Simultaneous translation will be provided for all presentations (French and English).

Conferences will be presented in person at CHU Sainte-Justine and in virtual format. On-site participants will be able to visit booths of organizations related to pediatric congenital lower limb malformations, and breakfast, snacks, and lunch will be included.

Childcare will also be available on-site – registration is required by March 11, 2023.

FREE event | Registration required
More details and registration on the event website:

Register Now

About MUSCO

MUSCO is a collaborative initiative carried out by the four organizing institutions. This approach aims to foster collaboration and mobilize partners to optimize the care and services provided to children with neuromusculoskeletal disorders requiring complex care by developing various projects such as this family-oriented event.

For information: congres.hsj@ssss.gouv.qc.ca

CONFERENCES

Participate in the videoconferences of March organized by L’accompagnateur :

In French only

March 13, 2024 | 7 p.m.: The 4th edition of the DuoEmploi
March 19, 2024 | 12 p.m.: Aging well for seniors with intellectual disabilities (PADI) and their loved ones, two realities to be met
March 19, 2024 | 6:30 p.m.: Benefits and credits for persons with disabilities and their caregivers
March 21, 2024 | 7 p.m.: Groupe St-Hubert’s inclusion projects: Partnership between Groupe St-Hubert, the Fondation Autiste & majeur and the Centre À pas de géant
March 27, 2024 | 12 p.m.: Supporting self-determination in schools: What posture should we adopt?
 

To Register

Lien Facebook

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