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January 2024 Newsletter

Newsletter January









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Dear members

We invite you to contact us if necessary,

📧 info@spph.net 📧

 

Elena : elenaseco@spph.net
Carolyne : carolynelavoie@spph.net

Rim : rimelkhouja@spph.net
France : info@spph.net
Marie-Pier : mariepierrochon@spph.net
Annie : annietellier@spph.net

MEDAL OF THE NATIONAL ASSEMBLY

On December 21, Renée Turcotte received the medal of the National Assembly from the MNA for Camille Laurin, Paul St-Pierre Plamondon.  This rare honour was presented to her in recognition of her exceptional contribution to the community, particularly through her work with Solidarité de parents for nearly 30 years. The Solidarity team was there to accompany and celebrate her.

IN PERSON MEETINGS “JASETTE” BETWEEN PARENTS

Would you like to take some time for yourself in 2024? 
Would you like to go out and find the opportunity to meet new people? 
There are two dates and two times available to you in February.
Come and have a comforting coffee with Solidarity parents!
We look forward to seeing you in solidarity!

When? Wednesday, February 21, 2024, between 10 a.m. and 12 p.m. AM. 
Where? At La Boîte Gourmande: 445 Laurier Avenue East, H2J 1E5 (across from Laurier metro station, north exit). 

When? Thursday, February 29, 2024, between 6 p.m. and 8 p.m. 
Where? Coming. Members will be notified by email. 

Registrations with Elena Seco by email at elenaseco@spph.net

JOB OFFER

Solidarité is always actively looking for qualified coaches for its Respite-Breakdown program. Thank you for sharing this job offer with your networks!

See Job Offer

Solidarité’s Head on Leave (TEC) program offers members the opportunity to hire someone during March Break 2024 for 32 hours of coaching. The TEC is offered exclusively to parents who must be away from home for work during this period and is allocated to member families whose membership is up to date and whose child or young adult is still living in the family home.

For its part, the 60+ program offers member parents aged 60 and over the chance to get respite through their own chaperone during the period from Sunday, March 3 to Saturday, March 9, 2024.

Application forms were sent in January to families selected under these criteria with the request to return the completed form by January 28. 

Please note that responses to members who have requested the TEC and the 60+ will be sent before February 8 so that families can send their chaperone’s registration no later than February 15, 2024.

FAMILY MATCHING

Would you like to be able to talk to another parent of a child with special needs in a similar context as you? Would you like to meet another family to talk to or connect with in particular? Maybe you’re looking for a friend for your child?  Beautiful encounters and connections can be born between people who want to create a network. 

We need more families who want to be matched with another family living with a child with special challenges to have a family bank to compose and give a little impetus to our Family Match Program. That said, there is no commitment between our members.

You choose your criteria: 

  • Is it your cultural background, the one that would help you connect with someone and feel understood?
  • Is the diagnosis what is important to you to discuss issues common to yours?
  • Is your child’s age prioritized to be able to share? Or are you looking for a family with experience with a child older than yours?
  • Is your address (place of residence) the criterion that would allow you to feel closer to another person? 

CriteriaYour SituationVery important criterionMedium CriterionNot at all important
Cultural BackgroundEx. Algeria   
DiagnosticEx:ASD Level 2   
Child ageEx: 9 years   
AddressEx: Rosemont   

If you are interested, you can send your answers to elenaseco@spph.net by email.

MONTH OF ZEBRIER AND MONTH OF LOVE

February 28 is International Rare Disease Day and the month of February is also named Zebrier to raise awareness of the reality of the diagnostic wandering experienced by children and adults with a rare disease, known as orphan disease, who experience difficulties due to this rarity. Long delays, false hopes, isolation, and psychological distress are often part of the journey of people without a diagnosis. You can contact the Regroupement québécois des maladies orphelines for more information.

February 14 marks the well-known Valentine’s Day and love in our calendars. Occasionally, we would like to collect testimonials and images from our member families and ask you to share one of your favorite family photos.

FIND A CAMP

It’s only February that we need to think about summer camps, because did you know that planning for a special needs child’s summer should be done early? 

So that you are not caught off guard, we present here information to better search for your camps for the summer of 2024 and we advise you to quickly consult the registration procedures of each camp since they vary. 
 

  1. The Association des camps du Québec allows you to search for certified camps, vacation camps or day camps on their web page by filtering by “Special Needs”.  Some camps specialize in clients with special needs and others integrate these children into regular groups.
     
  2. Organizations offering recreational activities and/or camps, specific to clients with or without special needs, also offer day camps in the city. You can register your child with community organizations in your borough. Since the camp must apply for financial support from the Recreation Accompaniment Program at the end of March each year to apply for financial assistance to have chaperones for children with special needs, your child’s registration must be completed before the date of submission by the organizations and that is why you must apply for your application in February. 
    To make the camp eligible to apply, you can refer them to AlterGo (ARLPH) – (if the camp is not already aware). 
     
  3. The City of Montreal, for its part, organizes camps in the boroughs of Montreal. For children who will need a chaperone at a regular camp where they will be integrated, don’t forget that registration can also start in February. You can find these camp options on the Loisirs Montréal platform.

HERE IS A SMALL, NON-EXHAUSTIVE, AND ILLUSTRATIVE LIST OF SOME CAMPS:

The Masawippi day camp at the Mackay site is for young people aged 5 to 25  with significant physical disabilities, as well as for their summer camp located in Ayer’s Cliff (Eastern Townships), which can accommodate young people aged 6 to 30, registration begins on February 15, 2024.

At the Centre Plein Air Fatima camp, registration is as early as mid-January for their day camp, but for the summer camp, it is wise to do the process in the fall if you are a new camper.

At the CESAM day camp,  which has addresses in Rosemont, Nuns’ Island, North Shore, and South Shore, for young people aged 6 to 13, integrated into groups of neurotypical children, registration will also begin in February 2024.

At Camp Papillon, for children and youth aged 4 to 25 living with a physical and/or intellectual disability or with an autism spectrum disorder, the pre-registration period for summer 2024 begins in January, but please monitor their Facebook and Instagram pages for information.
For the Day Camp in Montreal, you can contact Rose Mercier-Spence at 514 937-6171, ext. 224 for more information. 
For summer stays at the Summer Camp in Saint-Alphonse-Rodriguez (20 kilometers north of Joliette), you can contact Laury Guérin Michaud at (514) 937-6171, ext. 229 for information. 

For Gymno Montréal’s day camp, which is for young people aged 3 to 18 with learning difficulties or special needs, we advise you to follow their Facebook page.

At the YMCAs of Québec day camps, registration for the Companion Program for Children with Special Needs must be completed as of February 14. For more information, please write to inclusioncamps@ymcaquebec.org or call Connor Frigon at 514-687-9622 ext. 1517.

Au camp du Centre national de danse-thérapie (CDNT des Grands Ballets canadiens), on accueille des adolescents de 12 à 17 ans avec une trisomie ou une déficience intellectuelle. Il faut s’inscrire à leur infolettre.

DESTINATION C.A.M.P.

Do you notice that summer camps are expensive, but you would like to share them with your child? An initiative of the Association des Camps du Québec (ACQ) called Destination C.A.M.P. allows young people aged 11 to 17 from all backgrounds to stay at summer camps, without worrying about financial, material, or transport constraints. However, please be aware that a small financial contribution, based on the family’s income and ability to pay, will be required to register for the camp.

Criteria :

  • Be between 11 and 17 years old as of September 30, 2023.
  • Living in Quebec.
  • Consider participating in the program for more than one summer.
  • Have availability to stay at a summer camp.
  • The length of a stay varies from 1 week to 1 month and is determined in collaboration between the ACQ and the participant.
  • Submit the nomination form before the deadline, which is usually in March.

Learn More

HYPERSENSITIVITY TO NOISE IN CHILDREN

Children with ASD are often affected by sensory hypersensitivity or hyposensitivity: they may then be extremely sensitive and bothered by the stimuli of their environment, or on the contrary not react at all.

Noise hypersensitivity, also known as hyperacusis, is a condition in which a person perceives sound stimuli at a much higher level than average. Even if, in children, it causes difficult behavior for those around them, hypersensitivity to noise is not a whim or a search for attention. Auditory hypersensitivity has neurological bases (functioning of the nervous system) and involves atypical processing and perception of noises by the brain.

For the hypersensitive child, the ordinary noises of everyday life can become sources of stress and discomfort and can trigger intense physiological and behavioral responses. This can lead to tremendous physical and mental fatigue and lead to fears/opposition/avoidance of contexts prone to these noises. This results in reduced participation in social activities, difficulty concentrating/academically, and impacts the overall quality of life of the child as well as that of those around him.

Each person has their own tolerance threshold for the different noises around them: 
Complex traffic noises, recess, physical education class, a party; the sudden sounds of ringing telephones, the school bell, a horn, the little brother; louder noises and noises maintained like an adult with a carrying voice, the dryer, the mixer and the musical instruments; “buzzing” noises from appliances such as dishwashers and lawnmowers repetitive noises such as rubbing fabrics such as winter overalls between the legs while walking; “human” noises such as someone breathing heavily, chewing, or salivating; noises with a certain frequency such as ice cubes in a glass, keys shaking or aluminum foil being crumpled up, etc.

Beyond an audiological evaluation, which should always be the starting point of the process (to exclude physiological causes), the occupational therapist is the professional who will play a crucial role in the evaluation and support the management of hypersensitivity to noise.

An occupational therapist is trained to assess and analyze a child’s individual responses to sensory stimuli, including auditory stimuli. To appreciate how the nervous system processes sensations, it is important that the assessment is not limited to the processing of noises. For this purpose, responses to touches, visual stimuli, smells, tastes, movements, and even visceral sensations such as fatigue, pain, temperature, and sphincter sensations (urge to pee/poop) will be considered in the analysis. It is important to specify if the problem is limited to auditory processing or if it is a more global problem affecting the entire sensory processing. The occupational therapist also evaluates the characteristics of the triggering contexts, the coping strategies available to the child to regulate themselves, and the impact on participation in occupations and intervening and advising the family at all these levels.

A hypersensitive nervous system tends to remain hypervigilant throughout life.  However, the earlier auditory hypersensitivity is identified, the sooner disability situations can begin to decrease. Many B.A.B.I. (Babies with Intense Needs) are sensitive to noise. Don’t hesitate to talk to the pediatrician and consult an occupational therapist as soon as you suspect it’s a possibility.

There are two main keys that guide the development of the child’s entourage and possibly the child himself:

  • Understand the functioning, limits, and peculiarities of the child’s nervous system and learn how to modulate them. 
  • Develop coping strategies and responses that are mature and appropriate as they are realistic for the age. For example, it’s normal for an 18-month-old child to become disorganized (crying, throwing a tantrum, refusing to cooperate) when faced with a noise that assaults him. On the other hand, 8-year-olds, are expected to verbally express what they are experiencing and participate in the search for solutions while keeping control of their emotions and behaviors.
In conclusion, the world is noisy and the child cannot escape it, but he can learn to deal with it. A consultation with an occupational therapist is indicated. 
 

To read the article



RECOMMENDATIONS OF THE MONTH

READ MORE
 

Aquariette: Where I Was Born” is the title of a comic book co-written and produced by participants of the  Montreal Association for Intellectual Disability (MAIH) Explore the Arts workshop in which more than 65 artists participated. It tells the story of a young woman living with an intellectual disability, who returns to her native village after several years. Hesitant at the idea of returning to a world in which she has not always felt accepted, she quickly made her mark with surprising encounters that helped her to tame differences and gain confidence.  If you wish to purchase the book, it is available for $30  at the Librairie L’Écume des jours, in Villeray and at the Librairie Planète BD, on the Plateau Mont-Royal. You can also order the comic book by calling MAIH or writing to sensibilisation@amdi.info
 

WATCH NOW
 

I am Me, the Artist” is a documentary presenting the journeys of artists with disabilities. For the past 25 years, Les Muses has been offering professional training in theatre, singing, dancing, and acting in front of the camera to young artists living with intellectual disabilities, autism spectrum disorder, and physical or sensory limitations. Follow the journey of these artists who are at different stages of their training, which is spread over 5 years.

  • You can listen to this documentary on AMI PLUS (AMI TV’s new free and accessible video-on-demand platform) 
    👉 Watch Now

LISTEN NOW
 

If you are looking for information about motor skills and would like to learn concrete strategies to support your child with difficulty, we recommend the Bouger pour Grandir by occupational therapist Josiane Caron Santha. 

ADAPTED ACTIVITIES

Open swim adapted at the Sablon Centre for children between 5 and 16 years old accompanied by their parents.

When? Saturdays between 5 p.m. and 5:50 p.m.
Where? At 4265 Avenue Papineau, Montreal, H2H 1T3
Price? The special rate is $5 for the parent-child duo for 50 minutes of pool.
Entries? They are mandatory, to be done before Saturday at 11 a.m., at 514-527-1256 ext. 301
 

Les Loisirs de Kiki offers classes adapted to children aged 6 to 18 with an autism spectrum disorder, an intellectual disability, or awaiting diagnosis accompanied by their parent. These are gross motor skills, coordination, and balance activities that also aim at socialization and the parent-child relationship in pleasure.

When? Sundays at 10:30 a.m.
Where? Les Notes du corps, 7705 17th Avenue, Montreal, H2A 2S4
Price? $229.95 for the parent-child duo for the session (January 21 to March 24).
Entries? They are mandatory, info@lesloisirsdekiki.org; 438-8872178

The “magic of the cold” has finally arrived, and your kids may want to enjoy the ice. To help your kids skate, you can get training wheels for skates, such as those from Skateez,  at Amazon or Canadian Tire.
 
If you or your child need equipment to move around on the ice, you should know that in many rinks in Montreal, Patin Patin offers rental and sharpening services for skates, helmets, and padlocks as well as different types of supports, available free of charge, to skate and allow everyone to indulge in the joys of winter.

Ice rinks:

  • Old Port of Montreal: Bonsecours Pavilion (near the Quai de l’Horloge).
  • Parc La Fontaine : Chalet Parc La Fontaine (entrance opposite the ice rink). 
  • Quartier des spectacles: Pavillon Esplanade Tranquille (corner of Sainte-Catherine and Clark streets).
  • Parc Jean-Drapeau: Espace 67.
  • Maisonneuve Park: 4365 Sherbrooke Street East.

Supports :

  • The sledge is wheelchair support for wheelchairs, allowing you to move around on the ice. 
  • The adjustable walker is an ergonomic choice that can be used by people with low vision and limited mobility. 
  • The tubular sledge chair is for people with reduced mobility of all ages who want to have fun without risk. 
For more information on where to rent or borrow equipment (cross-country skis, skates, snowshoes, sleds, walking poles, crampons and kites, click 👉 here

CONFERENCES

Participate in the videoconferences (in French) of the month of February organized by L’accompagnateur :

February 13, 2024 | 12 p.m.: Accessibility to adapted equipment: Know the offer and resources
February 21, 2024 | 7 p.m.: Taxes, a lever for more money
February 22, 2024 | 12 p.m.: The partnership between patients, their families, and caregivers: A relationship to be built! 
 

To register

PARENTS WANTED

The Centre collégial d’expertise en gérontologie du Cégep de Drummondville is looking for participants for interviews for their research projects.  
Here are some details about each of these searches and the desired participants.  
 
For the Parents-éternels project (individual interview), the aim is to collect the testimonies of people over 65 years of age, living with (or not) a child who is now an adult, but not autonomous, to develop online training and an intervention kit to promote the reconciliation of parenthood and love life among retired couples,  caregivers of their adult child who is not self-sufficient and supporting the interventions of local organizations.  For this project, we are also looking for stakeholders who are open to this clientele and who could also participate in the interviews.
 
For the Soutien-Coping project (small group interview), the goal of collecting information from parents (the age of the parent in this case does not matter) is to develop an online training and support program for people who are caregivers of a non-autonomous adult child.  The objective is, among other things, to help the helper helpline workers support and accompany parents individually in their balancing of roles. For this project, we are also looking for stakeholders who are open to this clientele and who could also participate in the interviews.
 

For more information or to participate, please contact myriam.chiasson@cegepdrummond.ca or call 819-478-4671 ext. 4111
 

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